We went to see him with Vika to ask questions about cost and they types they do the surgery involved and so on and so forth. Here are some of the questions and answers that he gave me to them.
The first question I asked was
Can you paint her fake eyes to look like her real ones? Why does it matter? Because Vika's real eyes don't look like yours or mine and I love them about her. I fell in love with those eyes in Ukraine and even in photographs before that.Yeah they aren't the eyes an artist draws that are perfectly symmetrical but they are her eyes.
His answer: Yes I can make them look like hers now. Right down to the muted blue color....he hopes we will chose a pretty bright blue but...he can understand painting them how they are and says he doesn't have many moms that want them to look the same after both eyes are removed.
(someone I had this discussion with said well don't you want them to look normal? No I don't want grotesque. Her eyes are pretty to me and not normal. What is normal anyways?)
What about extreme sports? Can she go tubing in them? He says no. Anything that has a blast of air or water you have to take them out. He said there are thousands of eyes at the bottom of all the Missouri lakes....lol from my experience there must be 1000 pairs of glasses there too. So that means that when tubing, knee-boarding, water skiing, high dives, or parachuting, she will need to take the eye caps out then she is good to go. You laugh but considering we have already gone tubing and Vika goes off the diving board, It is good to know these things. How much will they cost? Each eye will cost about $2300 dollars. Zoikes!! considering that she could lose one ....wow that is pricey!! But considering each girls eye exam cost $4000 after insurance it is cheaper than an eye exam. I asked Bud about Pegged Motility implants...He said no doctor in the Kansas City area would do pegged implants and that they cause a LOT of problems but that the doctor would attach the muscles so if in the future pegging became better then it could happen. I have read that pegging makes the eyes move more natural and stay in better. Bud says that part is true but not worth it overall. He said there are a lot of complications from it. He also said that she can remove the eye caps. They are not held in by anything but the eyelids so that is a possible struggle with some kids. I asked him would we be able to see if there are problems with the eyes?....as Vika does not as of yet tell us if she is in pain other than screaming....and only rarely that. He told us what to watch out for he also told us about our insurances and what would be covered and all of that.....Overall it was a great and devastating conversation that no one wants to have. But he talked to us for over an hour at no charge and he answers his own office phone when you call him. You can see he genuinely cares for kids.